Epi-Scot is a one-of-a-kind study aiming to recruit all the children in Scotland diagnosed with epilepsy. It’s hard to believe, but treatments for children with epilepsy are mostly tested on adults, not children.
We co-produced the animation with young people with epilepsy and parents of babies with epilepsy – they’re the experts on how to explain the study to children. And once we’d agreed the script and visual approach, we involved a wider group of children and young people from across Scotland as user-testers.
The voice of Hamish in the animation is one of the participants, an 11 year-old with epilepsy. “It was really fun” he said.
What they say
I’m so proud of the animation. Ten out of ten. I present it at every meeting I go to. You see lots of NHS animation where figures are generic or dated. Our film stands out.
It ended up on TV news and ten different newspaper and radio shows. Such good value for money.
media co-op understood brilliantly what I wanted to achieve, I can’t think of anything that could have been better. They came up with the idea of co-producing with children and parents – I learned such a lot.
Epi-Scot lead researcher